Whither Cochrane… and Patient Engagement? Transcript, stats + map

Weds Sep 26, 10pm UK/Ire, 5pm ET

Co-hosts @Laconic_Doc + @MightyCasey

Transcript;   http://wke.lt/w/s/LTeew

Stats;  https://www.symplur.com/healthcare-hashtags/irishmed/analytics/?hashtag=irishmed&fdate=9%2F25%2F2018&shour=16&smin=0&tdate=9%2F26%2F2018&thour=16&tmin=0

Map:  Map cochrane

Cochrane (previously the Cochrane Collaboration) is a global community whose mission is to gather and summarize the best evidence to support decisions about health care treatments.

Its systematic reviews are currently regarded as pretty much gold standard assessments of the currently available evidence (and have a process for updating). It even has a group, Cochrane Crowd who organize ‘citizen scientists’ to crowd source screening of studies in order to identify the most robust ones (randomised controlled trials) to include in such systematic reviews.

Cochrane had its annual Colloquium in Edinburgh just last week. The event was , with a good number of people who identify as patients, caregivers, and/or health services users/consumers attending the conference sessions.

This week’s will open up for questions and answers from the floor on how citizens + science can be facilitated by Cochrane, how Cochrane’s work and library-building can be a pathway to better global health and science literacy for all, and how to break down barriers between the scientific research academy, health policy wonks, and communities seeking better health, and the services to support that better health.

Useful Links

The Cochrane Colloquium

Cochrane main site

Cochrane Consumer Network (anyone can play!)

Cochrane Crowd

https://johannesen.ca/2018/09/the-trouble-with-patient-and-public-involvement-ppi-keynote-at-cochrane-colloquium-2018/

T1: How might Cochrane drive more health/science literacy globally?

T2: What role do people/citizens/patients/caregivers have in research and dissemination of same?

T3: How might Cochrane take the lead in , citizen-science edition?

T4: What do you see as the barriers to flipping the script on research, getting more research priorities directly from the community?

T5: What role might universities play in facilitating Cochrane + Community efforts?

Casey Quinlan () covered her share of medical stories as a TV news field producer, and used healthcare as part of her observational comedy set as a standup comic. So when she got a breast cancer diagnosis five days before Christmas in 2007, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most of a Daunting Gift” about managing medical care, and the importance of health literate self-advocacy. In addition to her ongoing work as a writer, she’s a popular speaker and thought leader on healthcare system transformation from the ground up.

Kit Byatt () is a recently-retired geriatrician who has eclectic interests: clinical, research, technological and communication. Over recent years he has become increasingly interested in the ‘patient’ component of Sackett’s ‘evidence-based medicine’ triad. He was introduced to Twitter at a conference after moaning to a Twitter-savvy colleague about his frustration at not being able to attend both of two parallel sessions – he has not looked back since! He tweets about these above interests, as well as medical politics and sundry ephemera. He was excited to participate in this, his first, co-produced conference, and honoured to have been chosen to live tweet from it.

Symplur Health Hashtags data for symplur.com/healthcare-has

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